Most parents want to wrap their children up in a blanket. For 12-year-old Sahana Collins, she has to avoid any cuddling like the plague.
Sahana never knew a day without pain. The young girl was born with a rare genetic disorder called Epidermolysis Bullosa (EB), causing her skin to blister and tear at the slightest friction. It also affects her internal skin, including her mouth and esophagus. This makes swallowing difficult and eating painful; her food has to be liquidized. This debilitating condition is caused by the lack of a protein that holds the skin together.
Sahana”s devoted mom Sharmila is determined to give her daughter a chance at a normal life. The brave mom is trying to raise 5 million to fund research to find a cure for the rare disease. She recruited the help of celebrities Kate Moss and actor Damian Lewis, along with wife of the Prime Minister of the United Kingdom, Samantha Cameron, to raise funds for research before it”s too late.
What a brave little girl. She”s obviously quite the fighter despite the severity of her condition. You can find more about Sahana and her charity here.